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Gleason 6 Decipher 0.64. Photon, proton, AS, TULSA?

Prostate Cancer | Last Active: Jun 10 7:28am | Replies (37)

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@matthewdore

Hey, @pdcar4756
thanks for the reply..... I understand your reasoning for Tulsa, I think my tumor location is good for Focal One or Sonablate. Otherwise it looks like our numbers are similar.

Can we continue to talk ? Hope you are doing well after your treatment. Please give us an update on your story if you are up to it.

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Replies to "Hey, @pdcar4756 thanks for the reply..... I understand your reasoning for Tulsa, I think my tumor..."

Yes, we can continue to talk if you wish. I am doing well following my treatment. I'm only about 7 months out from when I was treated. My PSA has remained stable at 1.3 for both 3 month and 6 month tests. My first MRI showed nothing of consequence. I still believe my body is healing from having the trauma of half of my prostate ablated. Doctor said it could take up to 18 months for all of the ablated necrotic tissue to be processed by my body. I'll be under the watchful eyes of Mayo Clinic for upwards of 2 more years. So I am in good hands as I see it. Given half of my 100cc prostate has been ablated, my urinary function has drastically improved. My urine stream is great. I have no incontinence or loss of sexual function. This procedure for my situation was what I believe to be the best option to balance quality of life with efficacy of treatment. My only concern is a high Decipher score and the risk that it may present for recurrence. My mental mindset is...........it will not come back. I'm also watching my diet more, exercising more, staying physically active, and supplementing with Vitamin D, ad daily multivitamin, and Omega 3 supplements. I've also nearly eliminated alcohol from my diet, but for a beer or glass of wine now and then. I still have some pelvic floor discomfort. I don't know if that is from the procedure or from the fact that I had chronic prostatitis prior to all of this. Since I still have a functioning prostate, I'm thinking I might still have the prostatitis symptoms. So maybe this is just my new normal. It seems to be slowly getting better. I'll see how I am by my next visit to Mayo in October. Best to you as well.