How do you manage neuropathy and loss of balance and walking ability?
How do you manage the situation when periferal neuropathy affects your balance and walking ability?
Interested in more discussions like this? Go to the Neuropathy Support Group.
How do you manage the situation when periferal neuropathy affects your balance and walking ability?
Interested in more discussions like this? Go to the Neuropathy Support Group.
@4suses2
Neuropathy has so many causes so I don’t believe anyone can honestly make claims that they identified the cause.
You mentioned doctors etc who back up their claim.
Please investigate whether these professionals have any connection to the manufacturer. Are they making a profit on the sales?
That happens more times than not.
Please don’t waste your money. There is no cure for neuropathy.
I’ve had it for 10 years. The cause is an autoimmune disease called Cutaneous Polyarteritis Nodosa.
It’s incurable too.
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2 ReactionsHello Rachel, Increasing I am losing the ability to walk without the use of a walker. I go to physical therapy but it doesn't seem to help. My neurologist doesn't seem very knowledgable about peripheral neuropathy. I don't know what to expect in the future. I wish I could help you.
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3 Reactions@SusanEllen66 - I have looked up your theory that idiopathic neuropathy is caused by Cutaneous Polyarteritis Nodosa (CPN) and it seems unlikely. Reading about the base condition here: https://en.wikipedia.org/wiki/Polyarteritis_nodosa it says that this disease is fatal within 5 years and luckily that does not apply to people on this forum! Please elaborate on where you read that there is a Cutaneous (skin) version of this disease. Give us a link please.
I do have peripheral neuropathy and I have a balance problem. Working with a chiropractor for the first time and my x-ray show that I have scoliosis in my spine, which is causing me to have a bad balance along with my feet and legs always aching. I tried cheer yoga, and I developed too much pain in my legs. I guess I was really pushing it. I started using a cane when I take a walk and that has helped my balance. As others have said, staying active is the most important thing. At this point, I’m trying to find the right shoe for my issues
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2 Reactions@tbfay
Hoka brand shoes are a little expensive but are known to help people who have balance and sides and neuropathy. They have a wider base which helps with balance.
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1 ReactionYou need to see a neuromuscular neurologist and a neuromuscular physical therapist. Neuromuscular helps with muscles and neurological disorders. I learned this from Dr Anne Oaklander in Boston. She also practices in other states. My neuropathy is autoimmune. I have balance issues and dizziness. I was put on IVIG Panzyga. It has helped a lot. I have lupus Hashimotos Sjogrens and connective tissue disorder.
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3 ReactionsI saw a neurologist about two years ago who really helped me he gave me quite a series of test including a brain wave and a brain scan told me I have peripheral neurology and nothing else but I do have. He said part of a brain on the bottom right lacked oxygen at some point in time which probably contributes to my balance problem
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1 ReactionGreat that u r finding the importance of B12.
Google informed me that our stomachs hold less acid with age.
Acid works on animal proteins to release B12. With insufficient we make less blood cells and get very tired. Alcohol reduces B12 uptake.
The easiest absorbed is METHYLCOBALAMIN.
That's the proper name for B12.
I have trigeminal neuralgia. I take B12 daily in the hope that it will regrow the nerves myelin.
It's called COBALAMIN because one soil bacteria only lives in COBALT soils. Grazing animals pull up some B12 containing soil with grass. We eat their meat to get B12. Interesting stuff.
82 yr old James. Bye.
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3 ReactionsI found 1000 micrograms METHYLCOBALAMIN nightly stopped my trigeminal neuralgia pain in teeth and gums rt side.
You are on the rt track with ALA.
Now only taking 100 micrograms.
Also turmeric with black pepper.
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1 Reaction@crossette CPAN inflames the arteries. When the arteries become inflamed, they swell and prevent blood/oxygen to get where it needs to go.
My nerves were deprived of the necessary oxygen, and became damaged.
You are asking where I read about CPAN. I didn’t have to read about. I was diagnosed with it in 2016. The diagnosis was confirmed by both the dermatologists at Mayo Clinic, and the USC Medical Center. It is rare.
The National Library of Medicine’s site,
PMC PubMed Central has info.
The NORD (National Organization for Rare Disorders)
rarediseases.org
dermnetznz.org
I hope I’ve given you the info you are looking for.
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2 Reactions