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PRRT side effects and results

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (57)

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@dbamos1945

@vinnie694: As I recall there was an Alpha PRRT vs. Afinator type Chemo pill and you were chosen for the pill. I could be wrong, but I am interested in your experience.
I am glad to learn your Lutathera infusions were tolerated well and you are getting the tumor stability you need; as well as the tumor shrinkage too! Please post your June/July scan results so we can celebrate with you.
I am so curious about the Alpha PRRT trial experience for our future treatment option. Best…

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Replies to "@vinnie694: As I recall there was an Alpha PRRT vs. Afinator type Chemo pill and you..."

I only took Afinitor for 9 weeks it gave me a major BP and pulse issue and I was hospitalized twice in that 9 weeks
They said I had Tachycardia
My oncologist wanted to continue however
My cardiologist made me stop
It took 15 months for my Tachycardia issues to resolve but in that 15 months I did do PRRT which I am sure slowed down the healing process
Good luck everyone