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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 9 hours ago | Replies (1229)

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@beachbumgirl

Hi. I’m new here. I had Celiac Artery Decompression in 9/2016. It started as epigastric pain after a Nissen Fundoplication 1/2016. I lost 76 lbs I was hospitalized many times. One time I met a wonderful surgeon who ordered testing of my celiac artery. Low and behold, that was the problem. This surgeon is VERY THOROUGH!
He needed to do a Endoscopy on me first to look at my Nissen. Once that was done in August, e planned the Laparoscopy Celiac Artery decompression. He rarely does open ones. In my case, he needed to take apart my Nissen to do the decompression then restructure the Nissen. This surgeon even CALLED ME THE NIGHT BEFORE THE SURGERY! I was amazed. The surgery went well. I stayed overnight. I was discharged the next day. His diet protocols were slow and steady. It took me 3 months to feel better and gain weight. The surgeon
was just on the cusp of starting a feeding tube. He saw me routinely until I felt better and was gaining weight.
About 1 month ago, the symptoms returned. I called the previous surgeons office, left a message as to how to proceed. He the proceeded to call me back that afternoon to discuss what I should do next. He is awesome!
So I’m following up with the Vascular Team tomorrow. Day by day the epigastric Pain worsens, nausea and dry heaves worsens, any activity like walking gives me more nausea and pain. The next step is a stent I was told by vascular. It is an awful condition.
Interesting enough, my younger sister has MALS also but in a different artery.

Wishing all here less pain..

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Replies to "Hi. I’m new here. I had Celiac Artery Decompression in 9/2016. It started as epigastric pain..."

Thank you for sharing your experience! You have been through a lot. It sounds like your surgeon is on top of this, please keep us up-to-date on what your next step is. So many of us do well, and unfortunately the pain returns. Welcome to Mayo Connect, it is so helpful to others to hear each person's experience. What are you doing to control the pain currently?