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Kaposi’s Sarcoma: Just want to talk
Sarcoma | Last Active: Jun 4 11:54am | Replies (24)Comment receiving replies
hello
i am from europe and i was diagnosed with classical kaposi sarcoma in 2023.hiv negative
i would like to know more about this disease and treatment
thank you
Replies to "hello i am from europe and i was diagnosed with classical kaposi sarcoma in 2023.hiv negative..."
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Hello adi -
Happy to make your acquaintance. KS is usually associated with men of Mediterranean descent. It presents as red or purple lesions on the skin: face, arms legs, and can also affect internal organs such as the throat, stomach, liver and rectum.
In my case I have been HIV+ for over 34 years with an undetectable viral load. Very rare for someone who is + with and undetectable viral load to develop this disease. Early on in the AIDS epidemic it was very prominent in patients and was a big cause of death for many patients.
My treatment has been with chemo infusions, drug is Doxil and so far has been very effective for me. Infusions usually take about and hour and have caused me mild side effects. Other treatments can be radiation and immunotherapy.
Currently the lesions are in remission and have not had a treatment in over a year. Am very happy with that result. If you have any questions or want to chat please don't hesitate to get in touch.
Good luck to you in your journey.
Sincerely,
Glenn