← Return to Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?

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@mikefrancis

Thank you. The following finding (along with symptoms) caused the treatment with Lanreotide:
“Non Specific mild uptake noted in the mid abdominal mesentery to the left associated with
subtle fat stranding but no definite mass or adenopathy. This could be related to mild
inflammation but attention on short interval follow-up DOTATATE PET/CT or enhanced CT would be recommended to exclude an early developing lesion.
2. Postsurgical changes without definite somatostatin receptor expressing tumor or metastasis.”

The follow up 90 days later was essentially the same. I decided to stop since there was no tumor on the scan and it did not help my symptoms. This cancer is so slow growing (sneaky) I feel they are missing something. -Mike

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Replies to "Thank you. The following finding (along with symptoms) caused the treatment with Lanreotide: “Non Specific mild..."

Did your retired NETS Dr refer you to another NETS specialist? If not I would definitely ask for a referral or find a NETS specialist. It’s very important to see professionals that deal with this type of cancer. Good luck on your journey.