Long term incontinence after RP

Posted by glenn12157 @glenn12157, May 25 9:22am

How long does full incontinence last after removal of the prostate ? I’m at four months,doing kegels 3times daily.Lying down and sitting are ok but when I stand or move around it is free flow.Any suggestions?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Doctors have said it can take up to one year in webinars I have attended. Are you taking cialis regularly and using a penis pump.

For some people normal erections never come back. You can use a Trimix or Bimix injection which works well for almost everyone. You could also get an implant which People seem to really like.

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I think he is talking about incontinence not ED

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Yep. You're confusing incontinence with impotence.
I had my RP last September & I'm still incontinent.

It's different for everyone, so there's no right answer.
Kegels should help - but in my case, I couldn't do them at all, even after 6 months of physio,
My understanding is that they wait at least 12 months before considering corrective surgery.
That's to give it time to get better on it's own.
They gave up on me - I'm having surgery next week.

So the short (and unhelpful) answer is that it's different for everyone.
But don't be shy about letting your urologist know that it's just not getting better and it's affecting your quality of life.
It's certainly better not having surgery, but it may be bad enough for them to ignore the guidelines.
But we're always here to vent to, regardless.

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Sorry about having the wrong information. I wrote the first sentence and then I got distracted, and when I came back, I answered the wrong question.’

It can take up to a year to get your full continence back. But some people don’t ever get it back. Here are some options in no specific order.

The sling is an option If you’ve had radiation the sling may not work..

Bulkamid is another option not as widely used on men

Another choice is ProACT. It has been discussed in this forum recently. They insert a couple of balloons in your body where your prostate was And they can inflate and deflate them to match what you need.

The AUS (artificial urinary sphincter) is the last option to consider. It is not 100% blockage, there can be leakage.

Not sure I could say 100% leakage proof about any of the products mentioned they just improve it a lot, something a single light pad can handle.

ProACT is something I would be interested in, A few other people in this forum have had it and really like it. A urologist I work with, who specializes in incontinence, said that they were working on getting certified for it, and she would look around for another urologist that was already using it at Kaiser.

Contact a urologist who specializes in incontinence. They are the ones to talk to about this.

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Thanks for the feedback.

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@peterj116

Yep. You're confusing incontinence with impotence.
I had my RP last September & I'm still incontinent.

It's different for everyone, so there's no right answer.
Kegels should help - but in my case, I couldn't do them at all, even after 6 months of physio,
My understanding is that they wait at least 12 months before considering corrective surgery.
That's to give it time to get better on it's own.
They gave up on me - I'm having surgery next week.

So the short (and unhelpful) answer is that it's different for everyone.
But don't be shy about letting your urologist know that it's just not getting better and it's affecting your quality of life.
It's certainly better not having surgery, but it may be bad enough for them to ignore the guidelines.
But we're always here to vent to, regardless.

Jump to this post

Thank you for the feedback.

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@jeffmarc

Sorry about having the wrong information. I wrote the first sentence and then I got distracted, and when I came back, I answered the wrong question.’

It can take up to a year to get your full continence back. But some people don’t ever get it back. Here are some options in no specific order.

The sling is an option If you’ve had radiation the sling may not work..

Bulkamid is another option not as widely used on men

Another choice is ProACT. It has been discussed in this forum recently. They insert a couple of balloons in your body where your prostate was And they can inflate and deflate them to match what you need.

The AUS (artificial urinary sphincter) is the last option to consider. It is not 100% blockage, there can be leakage.

Not sure I could say 100% leakage proof about any of the products mentioned they just improve it a lot, something a single light pad can handle.

ProACT is something I would be interested in, A few other people in this forum have had it and really like it. A urologist I work with, who specializes in incontinence, said that they were working on getting certified for it, and she would look around for another urologist that was already using it at Kaiser.

Contact a urologist who specializes in incontinence. They are the ones to talk to about this.

Jump to this post

Thank you.

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@jeffmarc

Sorry about having the wrong information. I wrote the first sentence and then I got distracted, and when I came back, I answered the wrong question.’

It can take up to a year to get your full continence back. But some people don’t ever get it back. Here are some options in no specific order.

The sling is an option If you’ve had radiation the sling may not work..

Bulkamid is another option not as widely used on men

Another choice is ProACT. It has been discussed in this forum recently. They insert a couple of balloons in your body where your prostate was And they can inflate and deflate them to match what you need.

The AUS (artificial urinary sphincter) is the last option to consider. It is not 100% blockage, there can be leakage.

Not sure I could say 100% leakage proof about any of the products mentioned they just improve it a lot, something a single light pad can handle.

ProACT is something I would be interested in, A few other people in this forum have had it and really like it. A urologist I work with, who specializes in incontinence, said that they were working on getting certified for it, and she would look around for another urologist that was already using it at Kaiser.

Contact a urologist who specializes in incontinence. They are the ones to talk to about this.

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Oh yeah. I forgot about ProACT. Thanks.
Sounds quite promising & totally worth mentioning, if things don't improve.

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It may be helpful to the urologist to quantify the leakage.
They love numbers & once I gave him the spreadsheet, there wasn't much else to say.
"How many pads a day are you going through?"
"Well... every entry there is a pad."
"Oh."

Here's my last one, which only notes uncontrollable urination into the pad (i.e. excludes normal toilet use).

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@peterj116

It may be helpful to the urologist to quantify the leakage.
They love numbers & once I gave him the spreadsheet, there wasn't much else to say.
"How many pads a day are you going through?"
"Well... every entry there is a pad."
"Oh."

Here's my last one, which only notes uncontrollable urination into the pad (i.e. excludes normal toilet use).

Jump to this post

Going through 4 to 5 adult diapers in a day.

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