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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: May 6 8:00am | Replies (1159)Comment receiving replies
Hi I do not know who to address this to so I'll guess I just state my case. I live in New England Massachusetts to be exact. not the city but the arm of cape cod I went to the emergency room complained about a migraine doctor ask some questions that led to two cat scans one of the head and one of my mid torso (Woke up one evening on my stomach gasping for air) and this is when I learned about a celiac aneurysm I happen to have 2.3 in size I later learned I have this compression syndrome. So I began to research on the internet and learned a lot about it. My main concern is that I have been bounced back and forth between the same group of doctors and ended up being referred back to the very first doctor who happens to claim he has done hundreds of celiac artery procedures. I my first referral was to a doctor in Boston where there are some of the best doctors in the world right but the doctor was only in the mood to give advice for procedure I guess. Scared and lonely feeling for sure Here is the most up to date reading I read, it is in PDF format. ( https://jamanetwork.com/journals/jamasurgery/fullarticle/212580#full-text-tab )
Replies to "Hi I do not know who to address this to so I'll guess I just state..."
Welcome to Connect, @dbarselow
You may also be interested in joining members talking about celiac artery aneurysms in this discussion:
- Celiac Artery Aneurysm https://connect.mayoclinic.org/discussion/celiac-artery-aneurysm/
Nice link and lots of cases, I am tired right at the moment don't have time to read them all but tomorrow is another day. I posted a link in one of my posts I think anyone with this condition should read it.
Well pfpurple your words are kind and helped me as I read them. I want to thank you very much.
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I am so sorry you are going through this! And two very different things on the same artery no less. Since there are only a handful of surgeons in the US with MALS experience and likely many more with aneurysm experience, I think if it were me, I would get with one of the MALS experts. There is a list on this site somewhere (@kariulrich can you direct @dbarselow ?). Also, if you haven’t done so yet, you might wish to join the MALS Pals group on Facebook. I have found it to be very informative (and a list of MALS surgeons can be found there as well). I should mention that no MALS surgeon has done “hundreds” of these (most have done 10-20 with the exception possibly of Dr Hsu or Dr Bilchik) but even they haven’t likely done a hundred even. MALS is extraordinarily rare and until recently hasn’t been well studied. I hope this helps a little. 🙂