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J-pouch leakage at night only: What helps to control it?
Ostomy & J-Pouch | Last Active: 3 days ago | Replies (12)Comment receiving replies
Looking for others with a jpouch just for general discussion. Mine is 29 years old. I have had minor issues, on the same medications for years, but in the last 1-1/2 years, I have started stool leakage while sleeping. I take 3-4 loperamide, Metamucil & an antibiotic in the evening, and still have leakage which I'm not sure if it is due to gas or if something else is going on. I am due for a pouchoscopy in a couple months along with a couple other tests to check muscle strength in that area. I know for some this is a normal thing, but has been frustrating and I seemed to just come on suddenly. Thanks in advance for any comments.
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@janspons
Just joined this group... 10 miserable years of living with UC, then Mayo changed my life. 3 surgeries later, Colectomy, J-Pouch, Takedown, I was SO MUCH BETTER. Actually, I was way better after the Colectomy, and would have been fine with that outcome, except for the full body hives, likely from the adhesive of the ostomy products.
Now, 14 years later, I'm still doing good. Really good, like the best years of my life! I still have hiccups and bumps in the road that are usually self-induced. Latest one was while on a bike trip in Croatia and I overdid it with figs and other local foods that were rich and unfamiliar to my abbreviated gut.
I use 2 generic imodium morning and 2 at night to slow things down and thicken the stool with Konsyl, a pure psyllium product that I get at Walmart and mix it up a little thinner than apple sauce after every meal (3x per day). I use calmoseptine when the butt burn rears its head, but this is relatively infrequent. I spend a lot of time outdoors as a fly fishing guide, XC ski guide and do a lot of cycling. I do a sigmoid pouch scope every three years, and there are minor lesions in the pouch, but no blood and the biopsies are always favorable. I'm really good at digging holes in the outdoors and always manage to get it done. This routine just works for me and I feel blessed to have come through the disease so well. Praying continuously that there will be no more big bumps in the road...
EP