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Hi Lucy, thanks for your response. I see Droxidopa is prescribed for Parkinson; do you have Parkinson's? My cardiologist has no idea why I have low BP everyday! I don't have Parkinson's Disease I have no problem timing or spacing out a dosage regime but I am interested in your BP at those times. i.e. would you take a 2nd dose 3 hrs. later if the first dose raised your pressure to 145 systolic, or even higher?
Replies to "Hi Lucy, thanks for your response. I see Droxidopa is prescribed for Parkinson; do you have..."
@gil101 no Parkinson’s but can be prescribed “off label”. I have seen where it is prescribed for nOH (secondary). I am diabetic & that is one thing that can be a factor in secondary nOH (I’m sure you can find more about that). Droxidopa is/can be very expensive but CostPlus drugs (Mark Cuban’s pharmacy) is very affordable (3 month 200mg was just under $125 last time I got it). I’ve just had to try increasing to 300mg & got 100’s to take along w/200’s…..3 month of 100’s was around & $95. So now I’m alternating that with the 10mg Midodrine. Also occasionally taking 5mg Midodrine half way (3 hrs) after Drox & usual Midodrine if I need to be more active (like going grocery shopping). Hope this all helps….please let me know.
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No Parkinsons - possibly nOH (secondary-I am diabetic).
I would try doing 5mg with 3 hr spacing (check this idea out with Dr) if 10mg is raising BP that much. It takes about 45 min. for Midodrine to start to work-how soon after taking it does your BP go that high?
5mg to not raise so much but then again in 3 hrs to get sustained effect. Check BP & see how that does. I would NOT do 10mg every 3 hrs if your BP is going that high after taking 10mg
If I needed to go shopping/something on my feet all the time, I would take an extra 5mg about 1/2 hr before getting to the store. My BP was so low, my Dr actually had me taking 15mg 4x/day-added the 200mg Droxidopa when that wasn't working well enough (then I was able to cut back to 10mg with occasional 5mg "boost").
Right now I am off all the meds to raise my BP....don't know if it is the colder weather or what "re-set" me (might also be weight related-was in hospital & lost too much weight-just getting back to slightly over 100 pounds now). I was also able to go from 20-30mg compression socks to 15-20's. Was able to get off meds once before too when Dx'd w/Afib & had multiple ablations (No Afib episodes now since 2022).
Please let me know how you are doing. Don't forget to run this idea (5mg every 3 hrs instead of 10mg every 6 hr) by your Dr.