1. < Prostate Cancer

What side effects, if any, did you have with Cyberknife?

Posted by jaygk @jaygk, May 4 1:02pm

Considering SBRT Cyberknife. Local Urology group has performed 4,000+ over last 10 years.

I am 65 I have T1c with all 12 cores positive (this seems unusual based on others I have followed). 11 (3 + 3) and 1 (3 + 4) with only < 5% a 4. No cribform or perinureal invasion. Had a CT and MRI. No cancer spread. Had second opinion and not recommended to active surveillance.

ED (only married 5 years )and leaking are important to me. Also worried about radiation bleed over to the rectum

What have been your experience with Cyberknife side effects. They would use the space OAR and 5 treatments. Very skilled radiologist

Any other recommendations for my type of cancer.

Having trouble deciding on treatment. I have been told it’s like pick your poison. .

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

cageykg | @cageykg | 14 hours ago

My age is 78 and Cyberknife 2 years ago. gleason was 3 + 4. psa 6.8 then. Today psa 1.1 and no thigh weakness here. ED is major. Two older brothers had prostate cancer. One died of it. All of us experienced major ED. No known other negative effects so far, but I'm still watching and waiting. Haven't heard of thigh impact from anyone.

REPLY
robertov | @robertov | 4 hours ago
In reply to @jaygk "Jeff. Thanks so much. Not sure if the seminal vesicles. The only thing I saw was..." + (show)
@jaygk

Jeff. Thanks so much.

Not sure if the seminal vesicles. The only thing I saw was a Partin Probablikty chart where it listed 2% which assume means < 2% chance it escaped. I did not have a decipher or PET or bone scan.

Would you recommend some of all of those?

I think they have a standard protocol of > 7 = treatment. I have read some suggest getting a second read on the samples especially the 3+4 = 7. But again with 12 or 12 positive I wonder if I should be conservative.

Can they send the samples to another lab? This was read by the Urology Groups own pathologist.

Jump to this post

I would argue that a PSMA PET scan is your most important. It will definitively (or as close as can be ascertained) whether you have metastasized. It is standard protocol after biopsy. Decipher, I don’t know how it works, but it is an estimate not like a PSMA, which tells you whether and where it has metastasized.

REPLY
View MoreView Less
Please sign in or register to post a reply.