How do you manage neuropathy and loss of balance and walking ability?
How do you manage the situation when periferal neuropathy affects your balance and walking ability?
Interested in more discussions like this? Go to the Neuropathy Support Group.
How do you manage the situation when periferal neuropathy affects your balance and walking ability?
Interested in more discussions like this? Go to the Neuropathy Support Group.
I have newly dx Idiopathic peripheral neuropathy. Doing alot of researching, I have NOT been able to find any positive results with ACL other than diabetic neuropathy .Anybody out there find such? Most studies with neuropathy center around diabetic neuropathy.
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1 ReactionJust started taking that supplement . How long did it take to feel some relief? I am not taking any antidepressant.
Hello there Mike,
I’m so glad to hear the barefoot shoes work for you. I too bought a pair of the barefoot shoes and was completely surprised when I saw that each toe had its own individual insert and that the best I could do for walking in those or to put them on my feet and go into water. They were just not sturdy enough for me.
Definitely going to look into the nano socks, so thank you for that.
MoB
Hi, MoB.... the barefoot shoes I bought don't have individual to inserts. They just have a wider toe box to give the toes room to spread out. Go to Amazon and search for Grand Attack Men's Barefoot Shoes. Those are the ones I got for $40. I wound up buying several pair in different colors. Also, LEMS shoes has their own web site, and they are also great, though a bit more expensive. They have a wide toe box. The socks I got were also on Amazon.... BraceAbility Neuropathy socks. Hope they may help your feet as much as they do mine! Best wishes! Mike
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3 ReactionsBefore I was diagnosed I started falling down stairs, nothing major but a twisted ankle. But one piece of advice I'll give is invest in closed toed shoes, i like cross because they are lightweight. Last year I was going up the stairs with no shoes on and stubbed my foot bad. I ended up having a small fracture in my toe. This year I fell down some stairs and hit that same toe.
I couldn't walk 2 minutes without it hurting and swelling months after so I just had surgery 2 weeks ago.
Crocs, or the like, have been lifesaver especially moving around inside. If i bump something, no biggie.
Just remember to wear them!!
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2 ReactionsMine was also diagnosed idiopathic, I do not have diabetes.
The other thing they found in me is my B12 levels were deficient. This can cause neuropathy symptoms as well. If you are vegan it's easier to deplete your levels and levels go down as you age. I am neither so that diagnosis is also idiopathic. But I do have extensive gut problems which I assume stems from.
I take once a month B12 injection now. I'm still on gabapentin for my PN though.
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3 ReactionsALA is in a supplement, “ Nerve Bliss” I just bought and not sure if I made the right decision. Has anyone heard of it? In addition it has B1, B12, B9, CA poppy, zinc and D3. Basic claim that enzyme MMP13 is the culprit eroding nerve’s myelin sheath and is inhibited by the B s that get delivered in ice cold water. Desperation can lead to “ why not try” decisions before checking with communities like this one.
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1 ReactionNerve Bliss '
I want to try this suppliment. Listened to the whole thing. New rearch found cause of neuropathy different from what has been thought. Endosed by highly respected universities & presented by a neuro doctor, who formerly had neuropathy. Sounds reasonable.
Anyone try it?
Please let us know if this works!
Welcome @4suses2, I had not heard of this though their website makes it sound good. I see folks selling it on eBay also which is a sign to me that it's just another so called neuropathy cure scam (IMHO). Their website doesn't really breakdown the ingredients but just says natural ingredients. Other red flags for me are the disclaimers at the bottom of their home page. I did see the list of ingredients in a photo of the bottle and it didn't include the 3 ingredients listed on their home page - Cinnamon Extract, Alpha Lipoic Acid and Aloe Vera Extract which is another red flag for me.
The Foundation for Peripheral Neuropathy has a list of supplements known to help neuropathy on their list of complementary and alternative therapies here - https://www.foundationforpn.org/wp-content/uploads/2024/11/Complementary-and-Alternative-Treatments.pdf
Do you mind sharing what type of neuropathy diagnosis and treatments you have tried?
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4 Reactions