Hi @jmmb, I have MALS and body aches and horrible hip pain. I also have chronic fatigue syndrome so I figure it's probably that. The pain is getting worse, and at times the hip pain is so bad it is difficult to walk or stand.

Hi @jmmb I do not believe that MALS contributes to body aches and hip pain, however what I have found interesting is that many MALS patients also have FMD, EDS, POTS. I have noticed that on several online support groups. I know this was brought up to the vascular department at Cleveland Clinic but they did not believe there was a correlation. I do hope we see more research in the area of MALS in the future.

Hi @kariulrich well I certainly have brain fog. I can't believe I wrote the question I answered. I wrote it 4 days ago and didn't even realize it when I was replying....oh boy, I am so embarrassed. I am on MALS Pals a lot and forgot that was my name on here. I need help obviously!!! I saw the pm and wrote you back. I need some sleep!!!! Have a nice holiday.

@kariulrich I am also going to cardiologist to see about POTS....

Kari, what is FMD? Do you happen to know any CFS support groups? I don't know which to focus on. It is all overwhelming. I hope I get some answers or direction of what to do next!! Hope you had a nice day and didn't eat to much and get sick. I am so sore from just cooking and standing. I get such pain from movement. I have the eating pain and the movement pain. Do you find that as well?