failed gastrojejunostomy

Posted by gmichaelc @gmichaelc, May 24 2:32pm

I had a gastrojejunostomy in 2002 because my gastroeneterologist perforated my duodenum during an endoscopy. (I have recently been told that that was not the best solution to bypass my duodenum where I had ulceration.) Since then, I have had increasing problems with bile and inflammation in my stomach and duodenum with ulcers in the anastamosis; and in the past 5 years, I have had 4 episodes of bleeding that required hospitalization. My GI doc has run out of medical options to address my symptoms. How do I find a top surgeon who can best assess my issues and provide an optimal solution?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Janell, Volunteer Mentor | @jlharsh | May 24 4:49pm

Hi @gmichaelc and welcome to Connect! You have to be so sad and frustrated dealing with this, especially since it seems to be creating more and more problems for you. It is scary when you can’t see any options. You are in the right place!

Not specifically GI, I have experience at Mayo MN shutting off an arterial access a couple years ago. I was told when I had it created locally no one would ever want to touch it if they didn’t create it in the first place. Mayo Vascular Surgery easily shut it off for me. It turns out about 90% of what my surgeon does is fixes from others’ procedures. The reason I wasn’t comfortable with the original surgeon in 2020 was that I ended up with Horner’s Syndrome following. Mayo Clinic Ophthalmology helped by resectioning a nerve above my eye so it would open normally. This seems to be in the DNA of Mayo Clinic by the very nature of what type of patients come to them.

I did find some resources that may be helpful:
-You could narrow down your search here: https://health.usnews.com/best-hospitals/rankings/gastroenterology-and-gi-surgery
-I did a Connect search and found this comment from @collenp mentioning a perforated duodendum (for more searches within Connect, just type what you want to search for in the box at the top of the home page): https://connect.mayoclinic.org/comment/958224/
-Contact Mayo Clinic directly: http://mayocl.in/1mtmR63

How is all this affecting your day-to-day?