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Anyone have rectal pain after radiation? What helps?
Prostate Cancer | Last Active: Jun 4 1:52pm | Replies (32)Comment receiving replies
The only comment I heard was on Google AI. It was everybody’s different. The RO wants my urologist to see if he knows of anything, I have to wait until July. I’m sure he’ll mention the gel spacer. So we’ll see I guess. I’d like to be cured and not on ADT, then again I’m 77 not in great shape, I love what little bit of a life I have. I’ve been in chronic pain for over 20 years. I have chronic prostatitis, peripheral neuropathy, proctalgia fugax, gastroparesis, back problems, spinal stenosis. I try not to take too much pain meds only tramadol and Tylenol. Sorry for telling you my sob stories but that’s my life, some good days, some bad days and cancer topped the list. Thanks again for listening.
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Not a sob story - YOUR story - And I feel for you to have to go thru this with all your other problems.
Speaking of which, proctalgia fugax is a very nasty syndrome and did anyone think to link the sudden diarrhea to this? Has it ever happened before radiation?
I’ve never experienced it myself but I do know that it is related to spasms in the anal musculature. I came across it when I was researching ‘anismus’ - the inability to have a BM not caused by constipation - following prostate surgery. Suffered with it for almost 6 years.
Oddly enough, since completing 25 sessions of salvage radiation my bowel habits are VERY MUCH improved! So whatever the hell made me ‘normal’ again has given you diarrhea…go figure.
Mention this to your RO and you’ll get an eyeroll or ‘that look’. Most of my docs -, GI, RO, Uro all think I’m crazy and think I don’t know the difference between constipation and a total inability to move my bowels after 70 yrs of life. But just finding the medical term (anismus) for what was ailing me proved that I was not insane…It was real.
I am sorry to say that I don’t think the drs will be much help. They’re not trained in the weird or the rare exceptions. If you do get the gel spacer it might help 🤞but there’s only one way to find out…Best of luck and please keep us posted on your progress.
Phil