← Return to High grade glioma: waiting for remainder of molecular testing
DiscussionHigh grade glioma: waiting for remainder of molecular testing
Brain Tumor | Last Active: Jun 3 5:42pm | Replies (34)Comment receiving replies
Replies to "Are you able to consider another hospital that has a neuro oncology team while all of..."
Yes, I decided to come to Mayo. An academic attending in radiation oncology--on Reddit said it was ludicrous (he used a stronger word) that I'd be treated by a first year resident. Also, my closest friends have all moved, and I can't manage by myself, so I'm hoping for support at Mayo.
It's so interesting that you were a renal social worker. I was just talking with my parents yesterday. My father is a neurologist with a special interest in dialysis, and my stepmother was a dialysis tech and then they bought--or however it works--dialysis clinics that they ran working with Fresenius. My stepmother was telling me how helpful and necessary the social workers are. They toured the dialysis clinic at Mayo to see how they were doing things.
So, I am scheduled at Mayo June 12--still need to figure out if Medicare will cover everything. I don't have enough support locally, so I need more support and not to be seen at a teaching hospital. I want to talk honestly with them whether standard treatment is wise at this stage. I've felt paralyzed--haven't moved off the couch for about a week. I'm really struggling.