Welcome @tobequitefranklyn, Dr. Google can lead you down a scary path and make anyone stressed out and confused. The one thing I can say is that you are not alone and I'm sure there are others here on Connect that can relate and share similar stories. It sounds like you are already trying to learn as much as you can and become a better advocate for yourself. While you wait for other members to respond, you might find it helpful to read through the following discussion to learn what others have shared.

-- Navigating conflicting medical opinions to be your own advocate.
https://connect.mayoclinic.org/discussion/navigating-conflicting-medical-oppinions-to-be-your-own-advocate/
Do you keep a journal of your symptoms and a list of questions to ask your rheumatologist?