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Lisa Lucier, Moderator avatar

Liver Diseases Support Group: Let’s connect

Liver Diseases | Last Active: Feb 6 9:51am | Replies (49)

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That's awesome! Congrats on your success! I am curious. Do you use zero-sugar soft drinks with aspartame-free sweeteners like sucralose or stevia? I assume you are talking about added sugar to food and drinks. I have F3, borderline F4 fibrosis. I eat only steamed vegetables (often steamed from frozen), fish, some chicken, occasional turkey, and maintain a low-salt regimen. I also indulge in occasional low-sugar jam and apple butter. I am wondering if I should get considerably stricter. My fibrosis status remains stable but not reduced.

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Replies to "That's awesome! Congrats on your success! I am curious. Do you use zero-sugar soft drinks with..."

I own stevia for baking but only drink coffee, tea and water. No soft drinks - and it's hard! Mary's Gone Crackers crackers replaced chips and roasted or raw nuts are snacks. Sweets are sweet potato, berries or an orange. Exercise is recommended so I took up upright yoga. Walking is supposed to be best. There's a good liver support group on Facebook with personal experiences and recipes. Hang in there!

@alexandern I've looked through a lot of posts to find someone with about the same level of liver disease as me - from my MRE report I'm between a stage 3-4 with fibrosis. I received this diagnosis from my MRE report last month but I don't see my hepatologist again until April so I really don't know anything about it except what I've been reading. From everything I can tell, diet is the most important thing I can do for myself right now. So, I've been researching liver healthy foods and eating very light. I have lost nine pounds and feel pretty good. The only symptoms I've ever had have been some discomfort under my right rib cage (which has been going on for years). I really want to keep it this way so I'm taking all recommendations. The question I have for you is, do you think it is okay that I won't be seeing my doctor again until April? I was surprised when these results came back and she didn't call me to discuss them. I messaged her on the patient portal and her only response was to tell me to continue eating lean protein and keep trying to lose weight. I then asked about Rizdiffera (which we discussed at my last appt and had decided to hold off on) and she told me that it was too late, that my liver disease was too far advanced. I sort of feel abandoned (?) at this time. Last year we did blood work every three months for a whole year and now, after my results came back worse, we are doing nothing until April. My questions for you are: How often do you see your doc, do bloodwork, etc? Do you think this is normal protocol? How long has it been since you were diagnosed at this stage, changed your diet, started losing weight, etc? I'm trying to get a feel for how long it might take me to see results? Also, do you have symptoms, anything I should watch for? Again, I know diet is the most important and key thing to do and I am doing that but I also don't want to miss the ball on something else important (like I did with the Rizdiffera). I'm also curious to see if anyone answers your question about your diet, it seems that you are doing the same thing I am - I don't feel like there is much more I can give up and still feel like I have any kind of food life lol!