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Liver Diseases Support Group: Let’s connect

Liver Diseases | Last Active: 1 day ago | Replies (12)

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@lisalucier

I'm tagging @cherrycompote @sandyjr @thatguy @sonyahamel @justmike @kbelden0 @parrot53 @mayo99824 @jmadiedo @zenk @aa4 @chinup23 @szelisk @gaylea1 @footballmum @khawki91 @misssuezq @lynjoy2 @rsedlock1958 @jennash7 @jeanne5009 @athenalee @katebw @alexandern @jamesduaiswamy @sandif @mydiamondsx8 @trishwrite1 @rosemarya to get the new Liver Diseases support group started.

You've all mentioned liver symptoms or liver disease previously in yourselves or someone you know, such as cirrhosis, fatty liver disease (MASLD, MASH), hepatitis, primary sclerosing cholangitis (PSC), alcohol-related liver disease, end-stage liver disease, and related conditions.

How are you or your loved one doing with your liver symptoms? If you or someone you know has a diagnosed liver disease, what treatments have you or they had? Do you have any suggestions for new members or pitfalls you'd encourage them to look out for?

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Replies to "I'm tagging @cherrycompote @sandyjr @thatguy @sonyahamel @justmike @kbelden0 @parrot53 @mayo99824 @jmadiedo @zenk @aa4 @chinup23 @szelisk @gaylea1..."

I am glad you commented because I had totally forgotten about this and maybe what I am going to share might help someone.
The first indication of something going on with my liver was high liver enzymes. The docs did a number of tests and there was not a consistent diagnosis except that it was low level fibrosis. Then they did a liver biopsy and said it was cirrhosis. I questioned this be cause they analyzed 4 samples that contradicted the past results but only 3 samples had been taken. My doc says this happens.

Go on a couple years and my liver enzymes were high but getting about 25% lower. Then all of the sudden they shot up again (3x normal). I was so disheartened. Oddly enough, I was also having tooth pain after dental work starting at that time. I went to my dentist and he could not identify exactly what was going on. He recommended toothpaste with extra flouride but it did not work. Finally we decided on a root canal because it kept hurting, sensitive to cold, etc. He found that two of the 3 roots were dead and one was really inflamed. When he worked on it my face just exploded with blotches. I looked into what it could be and found that oral infections can really affect your whole body, even your liver. We are still working on the tooth but the roots are now filled in. My liver enzymes are now normal or just slightly (5 points) above normal. If the tooth infection did to my liver what it did to my face, I can see how my liver would be really upset. My dentist doesn't acknowledge the connection. I see my gastro in a week. Most of what I read says there is a very real connection between oral health and liver.