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@texasblooms

I hope you do not find this harsh, it's written with my best intentions after recently feeling dismissed, frustrated and angry, again. Writing this has been therapeutic for me.
If it was me, yes, I would contact my Rheumatologist. I would immediately call the P.A., write a note on the doctors Portal, and send an email. I've been diagnosed with dormant inflammation and learned the hard way communication is very important. I find doctors are more responsive if I stick to concise and simple facts, omit the fluff. If the conversation is not all business you will lose the doctor's attention. What are the symptoms that have gotten worse? What medications were prescribed? How many treatments? How long was each treatment? Lifestyle changes needed to cope (not why). How should we proceed? Let the doctor tell you what's next and why. Then respond with direct comments/questions about your symptoms/treatment, do not divert. I've stopped self-diagnosing. I found this works better but nothing is perfect.
With that said, keep advocating for yourself and go with your gut. I've felt dismissed and my gut was right. It's a delicate balance.
One day my Rheumatologist said to me, very diplomatically, "rather than talking about all of your symptoms tell me about the one's that have gotten worse". When we have an appointment I type out a list of new symptoms (this makes me feel better and we don't waste his time), any symptoms that are worse, and tests ordered by other doctors. Please know he is kind and I never left his office feeling rushed.
Although I want confirmation about my bizarre symptoms and to talk with some who understands, my gut is telling me concise communication helps and we accomplish more during appointments.
All of your doctors probably write notes after your visits. I've asked them to send their notes to my three main doctors. If I feel immediate attention is warranted, I will notify the main doctors to watch for XXX doctor's notes through their preferred method of communication. This provides me with peace of mind knowing they have all of my records and it has improved timely communication.
Wishing you the best.

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Replies to "I hope you do not find this harsh, it's written with my best intentions after recently..."

@texasblooms, thank you! Your story, advice and list of questions was extremely helpful! My rheumatologist wants me to follow up with PCP, get test results for UTI and then review next steps. In the meantime I just discovered that I feel immediate relief with antihistamine. I’ve always been prescribed an antibiotic with mixed results and never thought to try an antihistamine! I really appreciate your idea of listing any new or worsening symptoms. With each new piece of info I am hoping that the nutritionist and a new rheumatologist, my current doctor retires in a few months, we’ll be getting a fuller picture. It helps to compare notes and questions here to prepare for the doctor visits!