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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)

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@blessedgma

@kariulrich, have you heard of any research in regards to the effects on the cardiovascular system after releasing the compression? My BP seems to drop throughout the day as I feel light headed. I'm thinking it could be post surgery, possibly as I'm just over 4 weeks recovery.
Also, I was wondering how you were doing? A few posts back you were mentioning that you were going back to doc regarding a block?

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Replies to "@kariulrich, have you heard of any research in regards to the effects on the cardiovascular system..."

@blessedgma I have not heard of any research on the cardiovascular system post compression. I believe I asked my vascular surgeon that question and there has not been much but case studies here and there. I wonder if it brings out a POTS in some cases, because several patients have described feeling the same way. I do believe that MALS surgery has an effect on the autonomic system. Thank you for asking how I am doing, I am currently losing weight again, having pain after eating and with exertion. I have been working with my primary physician and just seen an amazing cardiologist at Mayo Clinic. Dr. Sharon Hayes. We are in the midst of a cardiac work up to make sure it is not my heart, but truly a MALS situation. The symptoms are so similar. So far my cardiac work up is good. Back to your recovery, you are still in the very beginning phases of your recovery, it was not until week 8-12 that a few things started to normalize slowly! VERY slowly... It is a frustrating recovery because of the long recovery time. Even after 12 weeks it was still difficult for me, each month I would get stronger and feel better and at a year mark it was good. I know that sounds disheartening, but the milestones you make in recovery are so worth the end result of being pain free. To eat that first meal out with friends or family and forget that you have MALS is a freeing amazing feeling! Hang in there. Make sure you are getting enough fluids in, and salty foods... if the symptoms continue please let your doctor know. You may be dehydrated, or having some dystonia. This is a good link to read about POTS and symptoms associated with it: http://www.dysautonomiainternational.org/page.php?ID=30 So good to hear from you! Keep us updated!!