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Anyone feel tense throughout their body after the morning BE session?
MAC & Bronchiectasis | Last Active: May 24 8:14pm | Replies (19)Comment receiving replies
This is so true "BUT we have it and a good effective session of ACT gives me a real good sense of accomplishment. It doesn’t happen every time, but when it doesn’t it pushes me to try harder/better the next session."
As long as "trying harder/better" doesn't mean "trying too much." I haven't had a lot of sputum coming up the past couple weeks, but yesterday I had a great "garden workout" - I mowed at a pretty good pace (about 1/3 acre), took a break, then went weeding - bending, reaching, standing up, down again, etc. Last evening I probably coughed up as much mucus as I did in the past week, including some thick globs that had been around for a while. The good news - all of it was clear or white. The bad - my ribs are a little sore today.
I just wrote a piece about PT in a shoulder surgery discussion how it is not always done in the gym. I believe airway clearance is the same.
Here's a challenge for anyone who is bored with their routine - find a task in your home or yard that involves bending, reaching and stretching. Neb, take a brisk walk (or push your mower for a few minutes), then do the task at as quick a pace as you can. It doesn't need to be hard. When I was quite ill with MAC, I used to put the basket of unfolded laundry on the floor, fold it on the table or bed, deliberately placing piles "just out of reach" so I had to stretch, then walking back and forth to dressers, cupboards and closets to put it all away. My huff coughing afterward was always productive, and I got a hated task done.
Replies to "This is so true "BUT we have it and a good effective session of ACT gives..."
I do the same thing.
Towel by towel. Up and down the hallway to put away.
When I'm sitting at table I will take a wash cloth and push it back and forth across table.
Then stand and push up and down wall.
When I have pain instead of panicking I try to remember what I did last few days.
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Wow....mowed the lawn...1/3 of an acre. You go "girl". More than likely you did that while your homemade yogurt was fermenting.🤣😉
Yes, I purposely make extra trips in the house rather than one when needing to place things in one area to another to fit in more walking, movement. Also bend and stretch on purpose when rolling the water hose back onto the hose holder. All those little things help keep us going in many ways.
Sue I did really well these last two days. I decided to do less time nebulizing each nebulizing session. I use up all the saline in the vile by the end of the day. So each session is a very short period of nebulizing, ACB, Postural Drainage and Huff Cough. I do my mile walking after the first session, morning session. I do a third short neb session a couple of hours before bed and then a very short ACT and Huff cough. The late session appears to have helped me with getting a good nights sleep/rest. After the day of doing my tasks and short sessions I have been very successful in clearing much from the lungs....mucus and much mucus plugs. I remember the doctor saying you may not see mucus plugs coming up in the first session however later in the day is when they might, probably will, come up and out. So glad that what I remove has been slightly yellow to white and for quite a while. My MAI is staying at 1+ since being diagnosed with BE/MAI in Oct. 2023. I am giving more thought to starting the antibiotics since I feel I am more educated in what we need to do for ourselves and I haven't, so far, piled on another type of bacteria or a fungal infection for all the time I have had the need to clear my throat....and that means for a period of 7 years....meaning before the BE diagnosis and after diagnosis. Never had an exacerbation either. Lucky, lucky me.
Yes a hated task for us but yet we are so grateful for the growth in knowledge and headways made in the last decade for patients with BE.
Thanks again for all your help.
Barbara