Peripheral neuropathy FREEZING
I fell and was told I had central cord syndrome. Later Diagnosed peripheral neuropathy, main symptom freezing cold both sides especially below knees. Both feet feel like encased in a block of ice. Anyone heard of this?
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Welcome @majax, I have not heard of central cord syndrome. I did a search and found one mention of the condition in another Spine Health discussion by @jenatsky here - https://connect.mayoclinic.org/comment/824281/. I did find a reference on the condition that includes management and treatment information.
-- Central Cord Syndrome (CCS): https://my.clevelandclinic.org/health/diseases/22624-central-cord-syndrome-ccs
Did your doctor or care team suggest any treatments or physical therapy?
I have rynauds syndrome and have the ice cold hands and feet, they actually turn yellow and it’s very painful, especially in the winter
@majax
What testing did you have for your diagnosis and what specialists are you working with? Did you have MRIs, EMG/nerve conduction studies of limbs and small fiber neuropathy skin punch biopsy? Have you had extensive neuropathy bloodwork to check glucose, vitamin deficiencies and toxicities? Have you had a full blood panel of your iron and thyroid? Small fiber neuropathy, iron deficiency/anemia and thyroid dysfunction can affect your oxygen flow and temperature control.
@majax
Another thought is Reynauds syndrome which can affect limb temperatures and you may want to see a rheumatologist. An endocrinologist can help with thyroid.
I also have really cold feet all the time. I also have really cold hands.
I wear a special pair of socks bought at Walmart only offered during the winter. They feel like they are made out of cashmere. Really soft. They are called muk luks try googling it. I buy xxl and wear them to bed. Yes they are too big but can’t stand anything touching my feet. I think I took a picture of them in the package. Just an fyi if it moves into your arms I keep a cardigan sweater and blanket in my car. Blanket for lets and cardigan for arms. It can be 110 in Texas and I am freezing wearing long sleeves with my sweater.
My fingers used to turn waxy white, but that hasn't happened in quite a long time. Was mostly a wintertime thing when it happened. I don't recall that it was very painful. You might want to consider relocating to a warmer area. The last couple of years I've found it harder to tolerate the cold.
My feet and lower legs ofter feel numb and like ice blocks. The other night one lower leg felt warm to the touch and the other one cold to the touch.
A long time ago I had stiff hands and fingers to the point I couldn't hold a golf club. A rheumatologist in Des Moines diagnosed CREST Syndrome
https://www.google.com/search?q=crest+syndrome+symptoms&sca_esv=723a7197e346b727&rlz=1C1_____en-USUS1028US1028&ei=WugvaNfRGce3wN4PuMeEgAc&oq=crest+syndrome+&gs_lp=Egxnd3Mtd2l6LXNlcnAiD2NyZXN0IHN5bmRyb21lICoCCAEyChAAGIAEGEMYigUyBRAAGIAEMgUQABiABDIFEAAYgAQyBRAAGIAEMgUQABiABDIFEAAYgAQyBRAAGIAEMgUQABiABDIFEAAYgARInVtQ9h1Y9h1wAngAkAEAmAFooAG3AaoBAzEuMbgBAcgBAPgBAZgCAaACfZgDAIgGAZIHAzAuMaAH7AWyBwMwLjG4B30&sclient=gws-wiz-serp
A rheumatologist at Mayo couldn't confirm CREST and sent me to a hand surgeon who worked on both hands with little success. A booklet given to me by my boss's wife mentioned flax oil as a possibility. I started taking it in capsule form and all of the issues with my hands went away. Today you would never guess that there was ever anything wrong with them.
That same booklet mentioned to take zinc for stinky feet. I started taking that too and and ever since I have not had an issue with foot odor. I wore a beater pair of tennis shoes for 2 years and they never needed washing. Even today I have no noticeable foot odor, stinky socks or sweatty feet. If I go for a few days without a shower my feet may feel sweatty, but they are dry to the touch. You don't need as much zinc as you might think. I take 22mg twice a day in the form of zinc picolinate which I get from Swanson's vitamins.
https://www.swansonvitamins.com/collections/customer-favorites?DFA=1&UTM_Campaign=+Swanson+Supplements&UTM_Content=%2Bswanson+%2Bsupplements&UTM_Medium=PaidSearch&UTM_Source=GOOGLE&gclid=EAIaIQobChMIo7vH3uS7-wIVFcmUCR0P_Ab2EAAYASAAEgLDmvD_BwE&gclsrc=aw.ds
Be advised that I never found it helpful in dealing with the powerful foot odor that plagues some adolecent children.
My neuropathy causes extremely cold hands and feet, to a disruptive and sometimes intolerable level. I keep gloves handy and rarely am without socks. I found that after being prescribed Gabapentin for my Neuropathy pain, it also kept my cold hands and feet at very tolerable levels. I still have to avoid cold temperatures where I can; I manage my car temperature, can’t stay out in winter weather, manage my time in cold water in showers and the pool, and I avoid (or walk out of) ridiculously cold restaurants that start affecting me. I don’t linger for long in the refrigerated or frozen areas of supermarkets. I have to have a sweater and gloves at all times during our 100* weather because of indoor AC thermostats I can’t control. I control what I can to help my comfort, but before Gabapentin I was absolutely miserable with icy cold extremities most of the time.