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CRPS
Hello,
Has anyone been diagnosed with Complex Regional Pain Syndrome Type 2? I was just diagnosed with it today in my entire right shoulder on top of my peripheral neuropathy. I might going for a Peripheral Nerve Stimulation implant since there is evidence of nerve damage as the cause. Any insights from anyone?
Thank you and take care,
gus
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I have CRPS Type 2 and peripheral neuropathy in both feet. The combination it unbelievably terrible on bad days to miserable on good days. After almost 5 years my care team finally has me on a combination of meds that keep me able to walk. I still have bad days that putting socks on is almost unbearable not to mention shoes and walking but I still manage
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2 ReactionsHello,
Sorry about your condition. As long as we're still alive, the only thing we can do is to cope as best we can with the constantly changing symptoms of our condition. As the saying goes: "what doesn't kill us will only make us stronger". Please keep up your spirit and forge ahead.
I wish you the best.
Take care and have a serene evening,
gus
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1 ReactionI have CRPS in my legs. It started in my left leg and mirrored over into my right. Go on YouTube and read about the doctor in one of the New England states who has made quite a few discoveries about this disease. Get off of sugar! It causes inflammation and will make your pain more severe. It's a matter of days to get over the withdrawal of the sugar. I allowed myself two small pieces of candy for the first week every single day. then I did a piece every other day and then I stopped. You will get a little bit of a headache and that is a small price to pay in the overall picture. Also think about going gluten-free. You must keep moving. Read all of the information that you can find in the Mayo Clinic blog from the past. I have a Boston Scientific implant in my back and it has been in me for four years now. I am so grateful I did this instead of going the route of medication. I have also gotten one nerve block and I'm going in for a second one next month. Consider looking into this also. The biggest thing I'm going to encourage you to do is watch your diet. Get off of red meats. Eat at least 2 cups of vegetables every day of various colors. And eat fruits.
I was fortunate enough to find an excellent Pain management doctor that does not hurt me and like I'm one of the heads of cattle. Keep digging until you can find someone that listens to you.
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