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Testosterone Recovery after stopping orgovyx
Prostate Cancer | Last Active: Jun 2 9:32am | Replies (28)Comment receiving replies
I had 45 radiation treatments as well as 12 months on orgovyx. My T level was 397 when started and dropped to nearly 0 immediately after the treatments. After 2 tread my T rise to 134 but has since dropped to 108 where it has remained for the past year. My urologist does not want to start TRT until we see what happens in the next 6 months. Not happy with this as low T is a real issue with bring tired all the time. In addition I have now developed peripheral neurapathy in both legs. Have tests showed no never function below the knees. After research I have discovered that the radiation from the 45 treatments may have caused the neurapathy. It is called radiation induced peripheral neuropathy. Finally met with a neurologist who basically said that the radiation treatments could not have caused it. I sent him articles from major studies that show it is real and now he no longer wants me as a patient. Looking for a new neurologist. Any one have these issues.
Replies to "I had 45 radiation treatments as well as 12 months on orgovyx. My T level was..."
Radiation can cause just about anything - including neuropathy. That neuro doc sounds like a Real A***ole.
If not the radiation, what caused it, huh? If he was in the same health system/hospital it’s a classic case of gaslighting to cover their butt…
Phil
Sorry that the doctor reacted in this very defensive and unprofessional behavior.
I have sent peer reviewed journal articles relating to supplements I take, to one of my doctors via the portal they subscribe to. He claims that he didn't have time to read them. Perhaps he read them and felt that he would avoid an uncomfortable conversation ? Anyway, in the past, he has told me that the supplements I take "probably won't hurt". I am giving up trying to get him to see the supplements as a positive for my health and treatment.
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Gosh @golferdto - about 24 total months (i.e., 12 months of Orgovyx plus, if I am reading this correctly, about another year, maybe less, of post-Orgovyx testosterone recovery) and your urologist is still reluctant to let a 108 ng/dL total testosterone (T) level man utilize TRT? Sounds awful and overly cautious to me.
I was on TRT for 13 years after my 2012 low T diagnosis. I stopped T injections as soon as my biopsy confirmed Gleason 4+3 in March 2025. Now two months later my T is so low that I don't need Lupron or Orgovyx androgen deprivation drugs to begin my radiation treatments in early June. And I'm expecting my natural T rebound in future months to be quite small and likely similar to yours. Probably around or near 100 ng/dL. Not enough for a decent quality of life, especially since I need to resume employment.
I'm tentatively planning to resume TRT around month #8 of this self-imposed "castrate level" T. Can't imagine remaining at this level as you have endured for nearly two years.
Hope you are successful in finding a new neurologist. Maybe a new urologist too.