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How do you get some answers?

Post-COVID Recovery & COVID-19 | Last Active: May 27 5:00pm | Replies (30)

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@diverdown1

Your symptoms are also familiar to me. Mine started in 2022. I had COVID twice. I got it in January 2022, and then in March of 2022. June 2022 is when I woke up one day sick. I went to my doctor, got blood work. They thought I had RA. Epstein Barr Virus was reactivated and I tested positive for the anti-nuclear antigen titer. The RA doctor was useless and rude. Would not even consider my thoughts about Long COVID. I know that is what I have...3 years later. It is my experience that treating the symptoms is what is needed. Some can't be treated, like the tinnitus, and others. I have found that my ADHD medication (Vyvanse) helps me with fatigue and brain fog (some anyway). I also use Gabapentin and started taking Cymbalta. I do not like using medications, but I have to function. I do not know if you have post-exertion malaise (PEM), but I know in my case, If I do activities (even minor physically or mentally) the next day I feel awful upon awakening. I am in school online, and even writing a paper can cause the PEM. I have to pace myself. I have had to stop eating a lot of salt, sugar and can only drink water. Long COVID mimics so many other autoimmune diseases. I was tested for all of them and did not have them, however, my symptoms are similar to many. Find a doctor (primary care) that is willing to work with you on helping to treat the symptoms. Also, I suggest going to http://www.recovercovid.org
Hang in there...just for today!

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Replies to "Your symptoms are also familiar to me. Mine started in 2022. I had COVID twice. I..."

You comment that you can drink only water. 1. What - specifically - led you to decide this? 2. Did your doctor tell you this or did you reach this conclusion on your own? 3. Which of your symptoms were exacerbated if you drank liquids other than water? 4. Which liquids exacerbated which symptoms - if you know? 5. If you know, did you tell your doctor? 6. Did your doctor have any opinion about your decision? 7. If so, what was it?

This is me!!! Oh my god I am not alone. And because I am a woman ( I believe) stress and depression seem to be the go to answers! That’s BS. Trying again with my PC doctor in June. I feel so useless. Each day is unpredictable. Will I be able to function or not? I never know. I hope I get help