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@plumeria3

I was diagnosed with Stage 1a Invasive ductal ER+, HER2- in late 2022. I did bilateral mastectomy in early 2023 and then started Anastrozole shortly after. After about 16 months I started to get severe tendonitis- Dequervain's in my left arm as well as carpal tunnel in both arms. I went to an orthopedic doctor to get treated and stopped the Anastrozole. My oncologist suggested trying Letrozole after a couple weeks break from Anastrozole which made things even worse. So, I took a couple months break from the meds. In the meantime, I got cortisone shot for Dequervain's and wore arm braces for carpal tunnel. The pains went away during the 2-3 months break. The oncologist said we could try Tamoxifen but after 5 months on this I got the worse calf cramps such that I could barely walk at times so I have now stopped all endocrine therapy and hoping for the best. I was on the Endocrine therapy for 2.5 years, so short of the 5 recommended. My Breast Cancer Index showed I would not benefit from an additional 5 years of Endocrine therapy and my risk of distant recurrence was 3.2% so I can only pray recurrence will stay away and do other things like eat healthy, exercise regularly and watch stress. I felt that if I suffered through this pain it would do irreversible damage to my muscles and bones, let alone have a bad quality of life as I could not do my daily activities.

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Replies to "I was diagnosed with Stage 1a Invasive ductal ER+, HER2- in late 2022. I did bilateral..."

Hm. You had bilateral stage 1a and still were encouraged to take it. Hard to hear. I find out this afternoon if its negative or positive. My gene testing was done day one with a scare 5 years ago. My sister and cousin had br ca, other cousin died youngish with ovarian. Other side of family, lots of ovarian. Dr. is concerned about family history. But I was thinking if i just had a double, I woukdnt need anything else. I had a Complete hyst with ovaries 20+ year ago. I was hoping i could avoid radiation and chemo. Each dr and cancer is different. Thanks for sharing.