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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 7 hours ago | Replies (1152)

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@jmmb

Hi @kariulrich and everyone else. Well as you know from my posts, I have been going to Mayo in Scottsdale AZ. This was for GI issues. I recently met with a vascular surgeon and really liked him. I felt he was pretty educated. Before we go any further, he has me scheduled for CT angiogram with contrast to see how stents are doing. I mentioned the celiac block to him and he explained that, but wont know anything until scan.
My questions are if anyone has had any of the following happen to them and if so, what do you suggest. I was referred to Mayo GI due to SIBO. I have had 3 positive breath tests. First test was breath test with 50g of glucose and 2 hours. From most of my research that will only show top of small intestine. You need lactulose and at least 3 hours. My previous tests showed me peaking at about 2 hours and then way high. Also with glucose it is suppose to be 100g if used. My dr. says I absolutely don't have sibo. My gastric emptying tes showed faster than normal in the small intestine, and the very lowest number in the range of the other 2. It was 5 hours and come back next day. She said it was fine. My fructose breath test was negative but my lactose was positive with high numbers. I knew I had lactose intolerance before. I am afraid she will say this is why my symptoms and I don't beliee so since I have had that my whole life and all these symptoms now are just after the MALS 1st surgery. I also can't tell anymore which pain is from which problem. All previous gi drs said won't be able to get rid of sibo since arteries are narrowed and not enough blood flow. My previous surgeon said no it is fine. I am curious to see what the surgeon at Mayo in vascular says. For 3 years I have been researching sibo and now I am told I don't have it on a test I don't have much faith in. My gi dr. at Mayo said that one is better than the lactulose. I don't know what is wrong with me anymore I feel like.
Anyone else have this?

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Replies to "Hi @kariulrich and everyone else. Well as you know from my posts, I have been going..."

@jmmb All of my GI tests came back normal, like you my small intestine was a bit faster, and large intestine slow...they also told me this was normal, as far as your other tests etc...Mayo will sometimes have different parameters that they measure things by then what you find on the internet, ask them about it. Ask you Dr. Why they do not think you have SIBO, tell them what concerns you. The doctors are more than happy to explain, it is there area of interest and they want you there understand. Do not be afraid to tell them what you know, and why you think differently, that is part of advocating for yourself. Trust your self, you know what your body is telling you better than anyone. It will be interesting to see what the vascular doctor has to say. I know you have read a lot about SIBO, thought I would post this article as a reference for others. Keep us informed! http://www.mayoclinicproceedings.org/article/S0025-6196(16)30589-4/pdf