← Return to High grade glioma: waiting for remainder of molecular testing
DiscussionHigh grade glioma: waiting for remainder of molecular testing
Brain Tumor | Last Active: Sep 17, 2025 | Replies (45)Comment receiving replies
Replies to "I just had my first online radiation oncology appt. It was with the resident and attending...."
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Are you able to consider another hospital that has a neuro oncology team while all of the major research hospitals are teaching hospitals, at the very least you should have a 'fellow' who has been through residency, not a 1st year resident. I would complain to the attending, or seek other hospital teams. At least Mayo has a standard process for evaluations that I am sure are more forthright. My husband's glio unfortunately was so deep that he couldn't have a biopsy , that ruled him out for any trials. I did have an issue with his oncologist, however and requested a separate appt with him to discuss my frustration with him telling my husband & I that it had reached the stage of perhaps 6 months, vs telling my daughter who is a nurse, that he had a matter of weeks. that was in Feb , exactly one year and month, given in the orginal dx that he had proably a year to live, It is now the end of may he is still here, but his quality is terrible. I think its very hard for them to predict, and I accepted that but the communication was poor , ie difference between us and my daughter. I find that you have to 1. advocate for you or your loved one, and also call them out appropriately when you feel you are not getting clear information. Its a difficult disease with so many types and possibilities of approved tx vs clinical trials. I do know that my hospital has a cancer rn navigator who was helpful also. All in all as the patient you have the right to change physicians, also to request not to be on teaching altho before doing so , find out other alternative hospitals. I know all this because i was a renal social worker so many patients had challenges while on dialysis with tx inconsistencies, poor communication. good luck