Hi. I’m Pam. I was diagnosed with MC- collagenous variety- in 2022. That was after six months of chasing a diagnosis and dealing with frustrating red herrings in the form of infections that were coincidental. It was the most dreadful Period of my life.
After a colonoscopy validating the diagnosis I did the full course of Budesonide -9mg for 3 weeks, 6mg then 3 mg and it was a miracle.
There really isn't anything as effective as Budesonide. I did relapse twice - sadly not uncommon - and am now on 3mg as a maintenance dose and doing great.
Couple of questions: there are some known medication triggers. The three biggest offenders are:
NSAIDs - Ibuprofen
PPI (Nexium etc)
SSRI anti-depressants
Are you taking any of those routinely?
For the time being you will be happier on a BRAT diet - bananas, rice, applesauce and toast.
The ONLY thing that helped it subside is PeptoBismol gel filled caps and after reading some research and checking with my Gi doc, I took 3 capsules 3 times a day until the diarrhea either stopped or vastly improved. Then i dropped back to twice a day and then dropped to two capsules twice a day. When I could eat low fat / low fiber food and not have immediate diarrhea, i dropped to one capsule twice a day.
It is a career level effort to get this right. I hope my experience is helpful.
Thank you! I'm hoping my lower dose of Budesonide (6mg. for 4 wks and 3mg for 4 wks) will be as effective. I'm already getting better.