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Replies to "I too cough up blood from time to time and once it was so bad that..."
MAC & Bronchiectasis | Last Active: May 24, 2025 | Replies (5)
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I too cough up blood from time to time and once it was so bad that I went to ER since it was the middle of the night and I didn't want to fall back asleep if something happened. Every doctor has told me this is normal to have this happen occasionally. Do you have cavitary MAC? My doctor explained that it can be coughing up a blood clot (I have 2 small cavities) and not a major concern. Before the cavities I wasn't coughing up blood. Everyone is so different it's hard to say, just sharing my experience. They sent me to a thoracic surgeon who looked at my ct to make sure none of my arteries were close. He reassured me that I don't need it right now, but I'm not out of the woods, so keep taking my meds.
Replies to "I too cough up blood from time to time and once it was so bad that..."
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I have only coughed up blood one time during my MAC adventures- almost three years ago. I was diagnosed with MAC by accident in Jan 2013 when my PCP was checking on a totally different complaint. An x-Ray showed tree in bud in lower lobes. I had no symptoms. It tested out as simiae. We chose not to treat it. But in Sept 2022, I coughed up blood. The sputum tested positive for abscessus massilience. IV meds ( three) and airway clearance for the Bronchiectasis took care of that. I was on clofazamine for six months after the three IV meds. I would recommend going to UT East Texas at Tyler or Nat’l Jewish Health for treatment. Those two medical centers have been at the forefront of NTM treatments for decades.