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Microscopic Colitis

Digestive Health | Last Active: 3 days ago | Replies (66)

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@janstur

Hi. I was diagnosed with MC in February. I am 65. I had a full hysterectomy in September due to a diagnosis of precancer in my endometrium which turned out to be a small cancerous tumor. They got it all thankfully. 10 weeks later I went on a week-long cruise to the Caribbean and halfway through had lots of diarrhea. I thought it was food poisoning or giardia. When I got back it took a while to see a GI doc and then I did all the testing, (all negative), culminating in a colonoscopy with 3 biopsies. My diarrhea had been 6 weeks and the colonoscopy seemed to reset me, but I was diagnosed with microscopic colitis. I took Budesonide for 1 week and was not doing well so they told me I could quit. I was doing just fine, like my old self when I could eat anything and then bam, early May I had a flareup. I've been on the highly restrictive diet for too long now and am craving the old food. I've lost 12 pounds so far and can't afford it. I've always eaten healthy: no red meats or pork, fresh fruits and veggies as much as possible, and very little alcohol. I'm not a smoker. If anything I could exercise more but before this flareup I was walking a mile a day. I'm back on the Budesonide at a lower dose. I wonder...did the hysterectomy cause this? Did some weird bug in the Caribbean cause this? I seem to be coming out of this flareup, thankfully, but now I guess I add foods one at a time? Very depressed.

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Replies to "Hi. I was diagnosed with MC in February. I am 65. I had a full hysterectomy..."

Hi @janstur - you've been through a lot since your microscopic colitis diagnosis. It makes sense you'd be wondering why the flareup: Hysterectomy? Bug in the Caribbean? Or something else?

So that you can chat with others who have also mentioned microscopic colitis, I moved your post here:

- Microscopic Colitis https://connect.mayoclinic.org/discussion/microscopic-colitis-5/

Hoping you can connect with others such as @ymoreno2 @pb50 @kjane322 and others. I'd also like for you to meet @jlharsh.

Is your main symptom diarrhea? When this happens, is there anything that provides you some relief?

Hi Janstur, I can’t give you any answers, but I can sympathize with you. I get the depression. I did like your last sentence about seeming to come out of the flareup so I wish you full recovery. I would have flares and then recovery but it seems since the Covid vaccines I haven’t been able to stay in remission. I was on two biologics with bad side effects so I am opting to have my colon removed. In the meantime, I’m doing everything possible to ‘cure’ myself. Right now I am on the low FODMAP diet. I live in Canada and it takes a very long time to see a surgeon so I have until November 14 to get myself better. I wish you the best.