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Newly diagnosed with a mild case!
Polymyalgia Rheumatica (PMR) | Last Active: May 24 3:41pm | Replies (29)Comment receiving replies
I was started on 20 mg twice a day and was pain free in 3 hours. Have been tapering down now for several weeks--2 mg a day. Pain free in my legs, mostly pain free in my arms, but my hands are now the big problem. They hurt, they sting, they are often numb, etc. Have lost a lot of strength and will likely begin PT shortly. Never heard of this illness until I contacted it. It makes me tired much more quickly than before.
Replies to "I was started on 20 mg twice a day and was pain free in 3 hours...."
After enduring fairly extreme pain for a week until an adequate dose of P was obtained, my successful and mostly very-low pain taper was from 30 to 10 over a three-month period, then at 1 per month to 5, then at 0.5 per month to zero.
Although we seem to respond somewhat differently to prednisone treatment for PMR, most folks posting here seem to have more than their share of bad pain experiences and related problems when, 1) they were never on a high enough dose for long enough to suppress the pains adequately, or, 2) they taper too fast, and/or 3) they are unable to timely consult with their doc when things are not going as expected and perhaps start unilaterally chasing a bouncing ball of dosages, and/or 4) they have not taken advantage of the wealth of professional publications available here to understand PMR and related conditions sufficiently, and what it is reasonable to expect.
Most of all, you need a knowledgeable accessible doc with experience with PMR and related conditions.
I wish you all the very best on your journey dealing with PMR.
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It’s terrible. I never heard of it either. Good luck and get better.