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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)

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@atjmoney

Hello,
My daughter had the ultrasound they determined the nerve was narrow and there was fibrous tissue around the nerve. The surgery was to remove the tissue in hopes of relieving the nerve. It was unsuccessful and we're back at square 1. The next phase is the full surgery, I'm a little concerned about the healing process. She's a college athlete and very anxious to get back on the court. Right now her eating has regressed less than 800 calories a day, not good. she's starting to have pain with exercise, any suggestions on controlling the nausea and abdominal pain. I'm looking at cannabis and other alternative meds. Your thoughts?

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Replies to "Hello, My daughter had the ultrasound they determined the nerve was narrow and there was fibrous..."

I use ginger for nausea, it is the only thing that helps. I recommend ginger candies, or ginger ail, Bruce Cost is the brand I recommend: http://www.brucecostgingerale.com Has your daughter tried drinking ensure? I understand how difficult it is when you cannot eat due to pain and nausea. I have had MALS surgery twice, and recently had a celiac block which has not given me 100% relief. I am going to give it a bit more time, in the past Tramadol would help, I would take one mid morning and one late afternoon, that way I could eat some without the terrible pain that comes after. Unfortunately, tramadol does not help with the nausea and can sometimes make it worse. I have always wondered if cannabis would be an option since Tramadol is considered addicting. I do not know anything about cannabis, maybe there is someone on here that can enlighten us both. I go to Mayo Clinic Rochester, Minnesota and I do not think they prescribe cannabis.

I forgot to mention earlier if she is planning an open surgery, it is a huge surgery and a very long recovery time...6-8 months is reasonable to consider recovery time a year for full recovery. I am sure it depends on the condition she is in prior to surgery. If you can get her stable nutritionally it will be helpful. I would meet with a nutritionist who took the time to understand MALS and all the challenges. We met once a week, and I found it very helpful, and did get my strength up prior to my second surgery. How is your daughter handling all this, I cannot believe she is in college while dealing with these symptoms, my heart goes out to her, Can her school make special meals for her that she can easily tolerate? Maybe have small frequent meals and snacks? I was eating 10-12 small snacks a day, very small,, a bite of cheese with a bite of apple. That was a meal, an hour later I would have a few m&ms, what ever I could get down in small quantities. Hang in there!