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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)

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@jmmb

Hi @atjmoney. I feel for your daughter and your family. What did the laparoscopic surgery do? Was it to widen the artery? Was it like an angiogram where they go through her groin or arm? The amount of weight she has lost is concerning. Did they want to do an open surgery with her instead of the stent? Since she is so young, I would think the open one, but I don't know all the facts. I had stents as well and that was not too bad. Small scar on inside of my upper arm. I did have a hematoma and have to have a second surgery that day, but that was me, so I stayed an extra day or two.
You are right to get a surgeon who has performed these types of surgery before. Do your research. Have they done the Doppler ultra sound to see how much it narrowed? I don't know what advice to give since I don't know her details and I wouldn't want to say anything wrong, but feel free to ask me anything.
Good luck

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Replies to "Hi @atjmoney. I feel for your daughter and your family. What did the laparoscopic surgery do?..."

We were given two sets of facts ;one the surgeon said despite the very positive angiogram he wasn't very enthusiastic about the surgery working or helping my lovely daughter. She recently was told her gallbladder though not diseased isn't functioning properly with a score of 18.5 . So we are taking our daughter for a second opinion at another teaching hospital . It is an awful condition and I can't imagine how you function with the pain. Our beautiful daughter just graduated high school in May at the top of her class with college as a Math major weeks away. Now she deferred her admission and awaits a resolution so her life can be resume again. She is such severe pain. She has so much pain after she and eats so little not more than 800 calorie a day with great effort. Thank you for sharing your experiences and for your kindness means the world to a nervous /worried mom.