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PMR and the taper

Polymyalgia Rheumatica (PMR) | Last Active: 10 hours ago | Replies (18)

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@dadcue

"Tapering down prednisone for me was not a straight line sometimes I could reduce and then go back up but eventually I was able to stop taking it altogether."
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I really like your way of thinking. Tapering off Prednisone isn't a straight forward process. There isn't a single best way to taper off other than to keep trying until you succeed.

I'm at the same stage as you except that I do a monthly infusion of Actemra instead of taking methotrexate. All my bad symptoms also seem like they are basically gone. I no longer feel like I have PMR anymore except when I don't do an Actemra infusion in a timely manner. I like how I currently feel mostly because I don't have the Prednisone side effects anymore. I especially like that I don't need to worry about how much Prednisone to take everyday.

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Replies to ""Tapering down prednisone for me was not a straight line sometimes I could reduce and then..."

Yes my rheumatologist wanted to switch me to a monthly infusion or injectable but the methotrexate has done the trick with no side effects (bloodwork for liver has been fine) so I'm sticking with taking it once a week (8 tablets same day).