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Reclast infusion

Osteoporosis & Bone Health | Last Active: Sep 3 4:11pm | Replies (50)

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I'm happy to hear that your pain is finally subsiding some, and hope that it won't be too long before it's gone. Before this happened, I had no idea how bad pain could get and remain a constant problem. I was always able to continue with my life despite bouts of pain for various reasons. My heart really goes out to all the people who are suffering with pain.
I'm still really not sure why I'm having so much pain. My whole situation seems very strange and makes no sense to me. My pain starts when I go to bed, intensifying during the night, and by early morning I have to get out of bed because everything in the lower half of my body hurts so much. When I get up, I can barely walk because of the pain.
As the day goes on, and I'm more active, the pain lessens, so that by the evening I'm feeling almost back to normal, although the pain is still there.
The doctors say that the pains in my lower back, buttocks, hips, thighs, knees, and legs are all due to narrowing of my nerve and spinal canals and recommend I get two epidurals in my back.
Usually, people who have such lower back issues, have pain caused by walking and/or doing physical activities. My pain gets better after I do physical activities. I wish I could find a doctor who would really listen to me and look a little more deeply into my symptoms. It may be that my pain is caused by something other than my back, especially since my back issues were diagnosed several years ago. During that time, I was leading a full, active life, walking, exercising, doing all my own housework and gardening, traveling, etc. Now, it is difficult for me to do most things without the pain overcoming me.
I feel that the doctors are not really listening to me and maybe there is some other reason for why the pain is so excruciating at night and when I first get up. My hope is that, like you, the pain will gradually lessen so that I'm back to my "old" self.

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Replies to "I'm happy to hear that your pain is finally subsiding some, and hope that it won't..."

Right after my infusion the pain was always worse at night and if I moved the slightest during my sleep, it would wake me right up; sometimes 3-4 times a night. We have a puppy that seems to wait to hear me make a noise and then uses her nose to nudge me so I will pet her. This! Would wake me instantly. We had a really bad weather day so I spent a good share of it watching television and just trying to catch up on a little sleep. By the end of the day, I could barely move my arms without severe pain, this made me realize more movement helped reduce the level of pain. 11 months now and I still feel the pain, not quite as intense but it is definitely still there and I try all the time to use my arms as much as possible and then just a little more to Hopefully assist in reducing the level of pain. I can relate to your nightly disruption to your sleep! Try to just go back to sleep and do not let it get you down. You are control not the pain. I know this sounds off the wall but it helps me daily. Yesterday I tried to start my push mower that just did not want to start, well, I kept pulling the cord until my arm was feeling really lame but I kept it up until the mower finally started with a little tinkering. The pain did not go completely away but in time , hopefully it will! I’ve already shared with endocrinology, no more treatment until we find out what is causing this “ Discomfort “! Good luck and stay positive!