Connect
← Return to Median Arcuate Ligament Syndrome (MALS)
Discussion
Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)Comment receiving replies
My daughter is 18 and was diagnosed with MALS and we would most appreciate to hear how people's experiences were with surgery ? My daughter was recommended to have the lap version however there seems to be many posts including in medical literature saying a nerve block or other nerve procedure must be done for a higher success. My daughter can't eat without crippling pain and is loosing weight at a fast pace. I am grateful for this space looking forward to any and all feedback as we fall forward to a decision. Thank you.
Replies to "My daughter is 18 and was diagnosed with MALS and we would most appreciate to hear..."
Welcome to Connect, Rho. I can imagine that you are worried about your daughter. We have a few members here who can share their experiences with surgery for MALS with you. Please meet Kari @kariulrich and Lisa @lmtuska. In this discussion thread, Kari has also shared some valuable information about preparing for surgery that I think your daughter and you will find very valuable.
Do you have specific questions or concerns that you'd like to ask?
Thank you, everyone! We are just exploring our options before we proceed with the surgery. Hearing people's concerns and experiences help us wrap our head around all the possibilities. Thank you.
Connect
@worriedmom18 I would recommend a celiac block prior to surgery, from what I understand it is a good diagnostic indicator for a successful surgery. I recently had another celiac block, and so far it has been helpful. I have had 2 open surgeries for MALS. I understand the crippling pain your daughter is going through and my heart goes out to your family and her. A nerve block is temporary so that is something to keep in mind. How has your daughter been dealing with the pain? How is her weight? Any other symptoms? Many people with MALS also have problems with malnutrition and GI problems.