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@mmata

I'm so sorry that you are experiencing so much pain. I'd like to share something with you that I do to move through each day with my 24/7 terrible entire spine pain. I've has 11 spine surgeries and have an implanted Spinal Cord Stimulator that used to be so helpful in helping my pain - but unfortunately my spine has deteriorated so much on all 3 levels of my spine - that it no longer helps. You see, I have, in addition to the various breakdown of my spine- I have a condition called Adhesive Arachnoiditis. This is an extremely rare condition not only in the US, but also throughout the world. The nerves in my spine and around my spine clump together in bunches that some of my doctors describe as "clumps of over cooked spaghetti ". There is nothing that can be done to decompress the nerves. There is no medication to help either. There is no research being done or clinical trials since Adhesuve Arachnoiditis is so rare. So, the only thing I can control in my life to help me live a "normal life" each day, is to control my thoughts and to help my spirit throughout the day - each day. So, I have adopted an "attitude of gratitude". In other words, to be grateful for the people and the interactions I have with others, and to be thankful for Mother Nature's and all of the beauty I'm surrounded with each and every day. Plus, I try to reach out to others and to be pleasant to others and listen to them, if they are having problems - and to help whenever I can. Plus, I try to keep a sense of humor about myself, and about what I see or hear at any given day. Trying to keep an an "Attitude of Gratitude " really does help me not allow the terrible pain control my life. I still have control of somethings in my day to day life. I hope that what I've shared can help you too. You will be in my prayers.
Mmata

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Replies to "I'm so sorry that you are experiencing so much pain. I'd like to share something with..."

I am so sorry you suffer with this, is this the same as "Caude Equinis" ? I thank God daily I do not have it. Nothing can be done to fix our spines and knowing this has also moved me to keep the same "attitude of Gratitude", etc. you have described here 🙂 I also find myself watching documentaries of others with worse medical challenges. It can be easy to think and feel like you are the only one on the planet experienceing such pain...scary and anxiety producing.
Thank you for sharing the most helpful info I've heard! You will be in my prayers too.