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Polymyalgia Rheumatica (PMR) | Last Active: May 26 3:55pm | Replies (13)
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Replies to "I started with PMR symptoms in 6/2020. I finally was weaned totally off Prednisone in 8/2024...."
I’ve been trying to lower my dose of pred for over a year. I’m on Actemra Infusion once a month in to help me ween off, but each time I get to 2.5 - 3 mg the pain in my shoulders, lower back thighs returns, especially upon rising in the morning. . I’ve now at 3 mg for 2 weeks and I wanted to go back to 5 mg , which is my comfort zone. My Rheumatologist put his foot down and insisted I continue the taper, which drops to 2 mg next week. He’s concerned that I might never get off it and insists the Actemra will take over and that too will be eliminated eventually. I’m frustrated and I hope he’s correct, so I’ll keep on soldiering through. I’ve been on roller coaster for almost 2 yrs and pray I’ll turn a corner once I’m totally off prednisone, but there’s no guarantee.