Hi Rachel,

I live in North Idaho, so I am not close to any of the centers. I have a surgery scheduled at Mayo Rochester and would like to consult with a physician who is knowledgeable about Central Sensitivity Syndrome so that I can make sure my surgeon takes steps to minimize chance of a flare up. Because I am not technically a Mayo patient until I show up for the surgery, the Mayo staff are not willing to discuss my other diagnoses and how they will affect surgery until I get there. As you can imagine I don't want to travel 20 hours to find out IF they will be able to accommodate my other challenges. So my question for you is, do you happen to know of a list somewhere of other practitioners in the country who work with people who graduate from the Mayo pain program? I cannot find anyone near me who knows anything about CSS, but I"m hoping I could do telehealth or drive less than 20 hours to get some advice for the surgery. I'm looking for help in figuring out what kind of anesthesia, how the incision itself might affect my nervous system, etc.

Thank you for any help you can give!

Coppertop