Primary Small Bowel NETS, Liver Mets

Posted by fraaseo @fraaseo, May 14 2:44pm

I’ve included a photo of my liver Mets in case others are interested in what it actually looks like. Photo was taken by NETS surgeon prior to removal. Keep in mind it is magnified & many of the spots are no larger than the head of an ink pen.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@fraaseo

Dr was unable to get a clear view with the CT so he ordered a GA68 PET scan fusion. That allowed the Dr & Tumor Board to see (electronically) the best combined views of both the previous CT & PET scan. Interestingly enough the liver tumors did NOT light up on PET scan; it wasn’t until the Cytoreductive/debulking surgery he found all the tumors & ended up removing a triangle section (one-third) of the liver.

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How was the surgery? I’m looking to get it soon. Nets in small intestines.

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@taratga

How was the surgery? I’m looking to get it soon. Nets in small intestines.

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I don’t want to scare you, but it was painful 5 hour surgery. I was hospitalized x 4 days & demanded to go home on day 5; you get very little sleep in the hospital. I was on so much pain medication I remember nothing about being in the hospital. I took the pain pills for 4 days once I got home, then switched to Tylenol, I have a high pain tolerance & don’t like taking pain pills & was tired of sleeping. I had 44 staples & those caused a lot of discomfort.
After about 6 weeks I felt much better. Here’s a list of all the NETS cancer/locations that was removed:
A Peritoneum, pre-peritoneal fat
B Abdomen, left anterior abdominal wall, trocar site
C Abdomen, right anterior abdominal wall, trocar site
D Falciform ligament
E Liver, portion of right lobe of liver
F Liver, porta hepatis nodule
G Gallbladder
H Diaphragm, portion of right diaphragm and peritoneum
I Diaphragm, right diaphragm peritoneum medially
J Peritoneum, right gutter peritoneum
K Peritoneum, right lower peritoneum
L Bladder, portion of bladder peritoneum
M Peritoneum, left gutter peritoneum
N Peritoneum, left lower peritoneum
O Abdomen, sigmoid epliploica
P Pelvis, left pelvic peritoneum
Q Omentum, omentum nodules
R Sigmoid colon, wedge sigmoid colon
S Small intestine, small bowel mesentery
T Appendix
U Small intestine, small bowel lipoma
V Ileum, portion of mesentaric tumor and terminal ileum

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@taratga

How was the surgery? I’m looking to get it soon. Nets in small intestines.

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Hi I had surgery in Australia in a regional town 3 years ago had 1.5m of ileum removed and 10 lymph nodes removed. My surgeon used fine tubes under my skin which gave pain relief every 4 hours for 3 days. I also had stitches that dissolve as well. pain level once tubes removed was around 5 out of 10. Was not allowed home until I did a bowel motion which for me happened day 6 at night and went home the next day. Follow up 2 weeks later. I now have liver lesions in which my medical team are monitoring. Surgery time was 4.5 hours and I do not remember being transferred from recovery to room. good luck.

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@dbamos1945

@stevestenburg31: You have been given good advise to ask for a MRI scan. I would add: ask that MRI be “with and without EVOIST contrast”.
I have experienced best test results using this type contrast to reveal best info on my NET Liver metastases condition. This will provide your NET Cancer Specialist the information to recommend best treatment. Best health to you…

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That is what my doc orders for my liver tumors and they show clearly.

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