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@loreofox80

Hi Ed! Thank you for posting. Do I understand you that you will not be taking the Big 3 Antibiotics but will follow a plan? I think that is what I will do as well. I am with UCLA and I will see the pulmonologist for the first time on June 12. I have BE and MAC and showed up at the ER because I hocked up a lot of blood from my lungs in a grocery store parking lot! They ruled out TB and then laid this on me. I have lost a lot of my hearing and I don't want to take azithromycin because it is ototoxic. My hearing doc said what I would lose would not come back esp. with the degree of loss I already have. Two websites I found very helpful were bronchiectasis.com.au which is about both BE and MAC. and type inAirway Clearance, Pamela j. McShane, MD. It is a slide show out of Chicago, I believe. It's a little fuzzy but very good insight in airway clearance. Am not sure to whom this is going, but here goes. Thank you for your insights. Be well! Nancy

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Replies to "Hi Ed! Thank you for posting. Do I understand you that you will not be taking..."

Hi Nancy.

Thank you for pointing out the https://bronchiectasis.com.au/ website in your post. I AGREE that is a valuable site full of useful information. It was first recommended to me by a colleague of Dr. McShane's who is currently coordinating my care through UT Tyler and I appreciate you mentioning it here to remind me.

You described the fuzzy video quality using the links from the Australian website, and I know what you mean. I've endured it myself to get the useful information from that site. But I did find a higher resolution copy of Dr. McShane's 90-minute presentation from June 14, 2024 by following a link in the resources section of the NTM Info and Research website at https://ntminfo.org/#

I was able to choose a 720p resolution in setting to watch it and hear it much more clearly at his link: https://www.youtube.com/user/NTMir

There are quite a few other informative videos on that same YouTube "channel".

Take care

Ed