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Trial for new epilepsy med

Epilepsy & Seizures | Last Active: 1 day ago | Replies (13)

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@cathy5161

Praxis must want this done pretty badly. Just got off a 2.5 hour call with site coordinator. First had to sign a 20 page consent form, go through my medical history and meds, set up an app for an every day seizure diary, and request my records separately from 4 of my doctors (despite Praxis already requesting and having every medical file I had). The good part is I get $75 for every visit, and I can do the whole thing via home health doctors/nurses...for free. All transportation costs are also covered..
The first visit is an assessment if they think I even qualify. If so (and that may be a bit of a long shot given other quirky and rare neurological/ autoimmune issues), they will set up at least 4 more visits, and an end-of-study visit. So study is divided into the initial screening, which can last up to 4 weeks, study treatments with the new med that lasts 8 weeks, and an EOS visit. So looking at a total of 14 weeks.

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Replies to "Praxis must want this done pretty badly. Just got off a 2.5 hour call with site..."

if you have at least 2 focal onset seizures/month or 4 for tonic-clonic seizures, Praxis may still be recruiting. Big decision I know, and not without its risks, but if anyone wants to discuss one on one, let me know.