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Keytruda Maintenance Therapy: Sharing Experiences
Gynecologic Cancers | Last Active: Jun 1 9:11pm | Replies (30)Comment receiving replies
I shared my story earlier Stage I grade B, total hysterectomy, 6 cycles of carbo/taxes/ Keytruda combo. CT every 6 mo and CA 125 stable. Now on Keytruda maintenance every 6 weeks 400ml. since January 2023, over 35 cycles. Keytruda works well for me and have no side effects. My oncologist wants me to continue but there are no studies to clarify for how long is safe to be on Keytruda. Any info would be very helpful. Thank you!
Replies to "I shared my story earlier Stage I grade B, total hysterectomy, 6 cycles of carbo/taxes/ Keytruda..."
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I hesitate to tell you this, but it's my story about Keytruda and you asked.
Keytruda + Chemo worked well and the 2 tumors went away. (NED).
BUT ... I didn't stop the Keytruda by itself when I was "CR" (Complete Response) and it went too far. It attacked my autoimmune system & I got COP - Cryptogenic Organizing Pneumonia.
I didn't have side effects with keytruda either.
I was warned by my oncologist before I started. I remember clearly and I had written it down even. She said it attacks immune system but it can go too far and that's exactly what happened. Honestly this is not something you can find in writing but it did happen to me and I know someone else in one of my healing circles who had something similar and blamed it on Keytruda.
Getting rid of COP has taken me 2 years And I am still tapering off of Prednisone which has a lot of awful side effects.
There's more to this story but I will stop here for now.
I only want to help you with your decision.