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Water after 6pm?

MAC & Bronchiectasis | Last Active: May 25 7:57am | Replies (26)

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@sheila7a

You are off antibiotics? How long did you take them?
MAC is cured?
I watch the NJH videos on YouTube.
I really had no clue about this infection in my lungs until I started watching.
Pulmonologist would show me CT scan and I had so much trouble with PFT.
Still didn't take it serious until found UJH(or they found me).
Then the weight started coming off and lost of appetite.
Just so many things started coming together.
Trouble breathing, tired all the time. The worse was when I started panting at the mall and could barely make it to my car.
Still I did not go to ER.
I didn't even think of it when several times at different places a person would ask me if I was okay? Did I need help?
Now I see I must have been breathing heavy and just always doing things on my own would just say no.
I hope that you are well rid of your infection and it never comes back.

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Replies to "You are off antibiotics? How long did you take them? MAC is cured? I watch the..."

I am off all antibiotics at the moment (except nebulizing twice a day and using my albuterol). I took meds for 13 months for MAC avium and it cleared and so did my cavity. Then several months later I had a bronchoscopy and had Aspergillus and Abscessus so they treated the Aspergillus for 6 months. The new cavity I have is closing gradually but I am not on meds right now because my colony count for the Abscessus is very low and I have no symptoms. With this disease anything can change in a minute so I just stay positive and continue to do my ACT's daily for the rest of my life.