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DiscussionAnyone feel tense throughout their body after the morning BE session?
MAC & Bronchiectasis | Last Active: May 24 8:14pm | Replies (19)Comment receiving replies
Replies to "@blm1007blm1007 Good afternoon Barbara, When I hear this description of your morning, no wonder you are..."
Very well said Sue!!! I have often experienced harder to expel mucus after my nebbing and ACT sessions that lasted about an hour each combined. I’ve also wondered if it may depend on the location (upper or lower lobes) of the mucus. Logically it seems as though mucus in the lower lobes would be harder and take longer to expel. BUT I do believe in your theory that excess nebbing can cause a negative effect with excess mucus, I also wish we could get an answer to that question. I’ve come to believe we must try different methods, techniques etc to see which works best for us, and then do the very best we can at each session. We all know how difficult this disease is to deal with on a daily basis, BUT we have it and a good effective session of ACT gives me a real good sense of accomplishment. It doesn’t happen every time, but when it doesn’t it pushes me to try harder/better the next session. Don’t ever give up!!! God Bless us all.
Sue - Yes it is a good afternoon, the sun is shining and I, we, have our Mayo Clinic friends here with us.
My mind flashed and was talking to me as I wrote the post and it was saying to me much of what you have said. Somewhat common sense but it takes time to realize and figure it out what to do and not do, as you know.
I hope I am not a lost cause because I have constantly allowed myself to clear almost all day long. I hope I can retrain the system. It has to change....I allowed it, caused it, to "take over your (my} life." Going to work on changing that.
Yes, I did decide after writing the post that it might be best to do the walking after nebulizing and a short breathing/huff cough cycle and then go from there.
Good advice given to you by the RN and thanks for passing it on. Retirement is taking away our most experienced and knowledgeable medical people.
Yes NEVER going to clear it all out but that feeling of a lump in the throat gets to me.....and the reason for my constant wanting to clear.
You do a wonderful job of keeping up with us.
Thanks for your long thoughtful response.
Barbara
P.S. Your trip for you is just around the corner. Do you take pictures of your equipment on your phone in case of a language problem overseas if you needed something from a pharmacy while on your trip?