Hi @closetmonster93
Nice to be chatting with you again here, thanks for your message.
Throughout my epilepsy treatment journey, I've noticed something curious: most doctors seem reluctant to discuss the cause of epilepsy with their patients. The reason behind this hesitation remains unclear to me.
My breakthrough came when I consulted a distinguished neurologist specialized in epilepsy, who is also an associate professor of medicine at USP (São Paulo University). What struck me was her immediate diagnosis after asking me some questions —"You have temporal lobe epilepsy"—even before examining the exams that confirmed this condition. Her confidence and precision were truly remarkable!
I firmly believe we need much greater epilepsy awareness in our society. This neurological condition receives far too little attention in mainstream media. Here in Brazil, for instance, Alzheimer's disease features in weekly articles, while epilepsy might only be mentioned a few times throughout the entire year.
Increasing public awareness about epilepsy and its potential causes could help people make more informed choices, potentially avoiding situations that might put them or their children at risk of developing this condition.
Do you and others share this feeling? I'd be interested to hear your thoughts.
Hugs from São Paulo,
Chris (@santosha)