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DiscussionNewly diagnosed with MAC and Bronchiectasis. I have questions!
MAC & Bronchiectasis | Last Active: May 29 6:10am | Replies (34)Comment receiving replies
Replies to "Thank you @payette78 for posting and sharing your thoughts about the decisions you face. Like you,..."
Hi Ed! Thank you for posting. Do I understand you that you will not be taking the Big 3 Antibiotics but will follow a plan? I think that is what I will do as well. I am with UCLA and I will see the pulmonologist for the first time on June 12. I have BE and MAC and showed up at the ER because I hocked up a lot of blood from my lungs in a grocery store parking lot! They ruled out TB and then laid this on me. I have lost a lot of my hearing and I don't want to take azithromycin because it is ototoxic. My hearing doc said what I would lose would not come back esp. with the degree of loss I already have. Two websites I found very helpful were bronchiectasis.com.au which is about both BE and MAC. and type inAirway Clearance, Pamela j. McShane, MD. It is a slide show out of Chicago, I believe. It's a little fuzzy but very good insight in airway clearance. Am not sure to whom this is going, but here goes. Thank you for your insights. Be well! Nancy
Thanks for the lengthy reply. Good to know there is a workable path without the toxic drugs. Glad you are getting expert care and experiencing good quality of life. Hope that continues for a long time to come.