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Next steps and how to cope with pain?

Neuropathy | Last Active: May 31 9:03pm | Replies (8)

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Profile picture for Skywatcher @lindabyrne38

I'm sorry you are dealing with this. I have had single fiber neuropathy for 8 years now. I've had multiple other health issues going on and I got fed up and forced myself to start walking every day in Fall of 2023. It hurt my feet but it really helped me on my journey. I know you mentioned your hands...Maybe you can find some hand exercises? I'm not a doctor but I think improving circulation is key. Maybe you can google "exercises to improve circulation in hands." or where ever this is bothering you. To give you hope, 2.5 years later, my neuropathy is a lot better and I know longer have pain and it does not hold me back or keep me awake like it used to. It does resurface if I am a couch potato for a few days so that is my motivation to get moving. Physical Therapy may help too. Finding the cause is key. I was never able to find the cause of mine, but maybe due to my thyroid removal and cancer treatment over the last 20 years.

I hope this helps a little.

Linda

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Replies to "I'm sorry you are dealing with this. I have had single fiber neuropathy for 8 years..."

Linda, you are on to something in that exercise is key. We were born to move. I notice if I sit too much my symptoms get worse. I still do not know what I am dealing with but hope to find out. As for hand exercises there are plenty of videos and TV exercise shows that model hand movements.

Thank you. I finally was referred for physical therapy but have already been doing CT hand exercises for months. I have also, like you, started to be intentional with walking every day. I’m still hopeful something will help.